Lost & Found: What Brain Injury Survivors Want You to Know

I need a lot more rest than I used to. I’m not being lazy. I get physical fatigue as well as a “brain fatigue.” It is very difficult and tiring for my brain to think, process, and organize. Fatigue makes it even harder to think.

My stamina fluctuates, even though I may look good or “all better” on the outside. Cognition is a fragile function for a brain injury survivor. Some days are better than others. Pushing too hard usually leads to setbacks, sometimes to illness.

Brain injury rehabilitation takes a very long time; it is usually measured in years. It continues long after formal rehabilitation has ended. Please resist expecting me to be who I was, even though I look better.

I am not being difficult if I resist social situationsCrowds, confusion, and loud sounds quickly overload my brain, it doesn’t filter sounds as well as it used to. Limiting my exposure is a coping strategy, not a behavioral problem.

If there is more than one person talking, I may seem uninterested in the conversationThat is because I have trouble following all the different “lines” of discussion. It is exhausting to keep trying to piece it all together. I’m not dumb or rude; my brain is getting overloaded!

If we are talking and I tell you that I need to stop, I need to stop NOW! And it is not because I’m avoiding the subject, it’s just that I need time to process our discussion and “take a break” from all the thinking. Later I will be able to rejoin the conversation and really be present for the subject and for you.

Try to notice the circumstances if a behavior problem arises. Behavior problems” are often an indication of my inability to cope with a specific situation and not a mental health issue. I may be frustrated, in pain, overtired or there may be too much confusion or noise for my brain to filter.

Patience is the best gift you can give me. It allows me to work deliberately and at my own pace, allowing me to rebuild pathways in my brain. Rushing and multi-tasking inhibit cognition.

Please listen to me with patience. Try not to interrupt. Allow me to find my words and follow my thoughts. It will help me rebuild my language skills.

Please have patience with my memoryKnow that not remembering does not mean that I don’t care.

Please don’t be condescending or talk to me like I am a child. I’m not stupid, my brain is injured and it doesn’t work as well as it used to. Try to think of me as if my brain were in a cast.

If I seem “rigid,” needing to do tasks the same way all the time; it is because I am retraining my brain. It’s like learning main roads before you can learn the shortcuts. Repeating tasks in the same sequence is a rehabilitation strategy.

If I seem “stuck,” my brain may be stuck in the processing of information. Coaching me, suggesting other options or asking what you can do to help may help me figure it out. Taking over and doing it for me will not be constructive and it will make me feel inadequate. (It may also be an indication that I need to take a break.)

You may not be able to help me do something if helping requires me to frequently interrupt what I am doing to give you directives. I work best on my own, one step at a time and at my own pace.

If I repeat actions, like checking to see if the doors are locked or the stove is turned off, it may seem like I have OCD — obsessive-compulsive disorder — but I may not. It may be that I am having trouble registering what I am doing in my brain. Repetitions enhance memory. (It can also be a cue that I need to stop and rest.)

If I seem sensitive, it could be emotional lability as a result of the injury or it may be a reflection of the extraordinary effort it takes to do things now. Tasks that used to feel “automatic” and take minimal effort, now take much longer, require the implementation of numerous strategies and are huge accomplishments for me.

We need cheerleaders now, as we start over, just like children do when they are growing up. Please help me and encourage all efforts. Please don’t be negative or critical. I am doing the best I can.

Don’t confuse Hope for Denial. We are learning more and more about the amazing brain and there are remarkable stories about healing in the news every day. No one can know for certain what our potential is. We need Hope to be able to employ the many, many coping mechanisms, accommodations and strategies needed to navigate our new lives. Everything single thing in our lives is extraordinarily difficult for us now. It would be easy to give up without Hope.

from

http://www.brainline.org/content/2011/07/lost-found-what-brain-injury-survivors-want-you-to-know.html

and

https://www.facebook.com/livingwithheadinjury/

Also see

 

 

 

“Sharing, supporting, informing,  enlightening, “entertaining”(??), encouraging, empowering, igniting, uplifting (and perhaps even) inspiring”
enough there for now, c!

Helping promote better understanding and awareness of what is often termed “The Silent Epidemic” (and/or “The Hidden Handicap”)

 

dawn-best2

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About craig lock

ABOUT c the Author Craig has a 'passion' for writing books that tell stories about people doing positive things in this often so hard, sometimes unkind world, occasionally cruel, yet always amazing world - true stories that leave the reader feeling uplifted, empowered and hopefully even inspired. https://www.createspace.com/3779691/ and http://www.amazon.com/-/e/B005GGMAW4 from http://www.selfgrowth.com/experts/craig_lock.html and http://www.selfgrowth.com/experts/craig-lock Craig Lock loves to encourage and empower people to be the best they can possibly be, and to create what they want in life. Craig has learnt plenty from the "school of life" (still "battered and bruised") and also from a few "hard knocks on the head". He is an extensive world traveller (on a "shoestring budget") and failed professional emigrater who has spent most of his lifes savings on airfares. He is still sliding down the razor blade of life on the beautiful undiscovered island that is New Zealand, somewhere near the bottom (rude!) of the world near Antarctica. There he talks to the 60 million sheep! Craig has been involved in the corporate world (life assurance) for over twenty years in South Africa, Australia and New Zealand. However, through a strange set of circumstances and finding himself in a small town near the bottom of the world ...and with nothing else to do, he started writing. That was five years ago. Five published books later and having written another twenty manuscripts (on widely differing subjects - well what else is there to do here?)... this is where Craig is in the "journey/adventure" that is life. Craig has taught at the local Polytechnic, as well as running a successful creative writing course (not teaching sheep!). He was the author of (as far as we know) the first creative writing course on the internet Craig has many varied interests and passions. He is particularly interested in the field of psychology – studying the human mind and what makes different people "tick-tock grandfather clock". He is fascinated by the "overlap between psychology and the dimension of spirituality". One of his missions in life is helping people make the most of their hidden potential and so finding their niche in life... so that they are happy. Craig’s various books probably tell more about his rather "eventful" life best (no one could believe it!). He writes books with serious messages and themes, then as a contrast "rather crazy, wacky stuff"…to keep him sane here. As an ‘anonymouse’ person wrote: "All of us are born mad; some of us remain so." Well nothing else much happens in quiet provincial New Zealand, other than headlines like "Golf Ball Thrown at Policeman" (it missed, btw!) and "Beach Toilet Closed for Season." True! The various books* that Craig “felt inspired to write” are available at ebooks (digital books) http://www.amazon.com/-/e/B005GGMAW4 http://www.amazon.com/s/ref=la_B005GGMAW4_sr?rh=i:books&field-author=Craig+Lock Paperbacks (see https://goldendawnpublishing.wordpress.com/2016/12/20/paperback-writer/ and https://wanttowriteabook.wordpress.com/2013/06/07/paperback-writer-the-beatles/ https://www.createspace.com/pub/simplesitesearch.search.do?sitesearch_query="craig+lock"&sitesearch_type=STORE https://www.amazon.com/Craig-Lock/e/B005GGMAW4/ref=pe_584750_33951330_sr_tc_2_0?qid=1476388259&sr=1-2-ent http://www.creativekiwis.com/index.php/books and http://goo.gl/vTpjk All proceeds go to needy and underprivileged children – MINE! “When the writer is no more , the value of your purchase will soar! “ “Together, one mind, one life (one small step at a time), let’s see how many people (and lives) we can encourage, impact, empower, enrich, uplift and perhaps even inspire to reach their fullest potentials…and strive for and perhaps one sunny day even achieve their wildest dreams.” PPS Don’t worry about the world ending today… as it’s already tomorrow in scenic and tranquil ‘little’ New Zealand
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5 Responses to Lost & Found: What Brain Injury Survivors Want You to Know

  1. craig lock says:

    Thanks for the comment/follow/link/like/reblog and/or kind thought(s)

    (but if you are following me, my family and close friends say it would be far more entertaining with a video-camera*!)

    * By the way, do they still make them in today’s ever-faster changing world..or is it all done with mobile phones?

    “total non-techno” c (who doesn’t possess a mobile phone, after a rather eventful’ experience some years back, whilst trying to walk and talk at the same time )

    Men…Some Mothers Do ‘Ave ‘Em!

    Thanks for the follow/link/like/reblog/comment and/or kind thought(s))

    Hi

    CAN’T KEEP UP…BUT THANKS FOR THE “THANX”

    I’ve had many many hundreds of thousands (“zillions”) of comments on my various other WordPress blogs at https://craigsblogs.wordpress.com/2011/09/09/craigs-list-of-blogs-updated-sept-2011/
    in recent years …true!) …a few of my blogs went “balistically viral” a few years back.

    Obsessive or WHAT! Am really pleased you are enjoying my writings, as the reason I write is to share. However I am unable to keep up with the comments and was spending entire days just on replies on my various blog pages.

    Though I’m rather “driven”, I still get really, really fatigued (there’s a few books there). so sorry can’t reply individually to all you good people scattered around the planet, but DO try to read as many as possible daily (and even moderate a few when I get a “mo”), I got swamped with comments on my various blogs, so have had to close them off on all of my blogs, except for one or two of particular interest to me

    see
    http://www.headbraininjury.wordpress.com

    http://www.traumaticbraininjurytbi.wordpress.com

    https://headinjurytbi.wordpress.com/

    https://livingwithheadinjury.wordpress.com/

    http://www.livingwithheadbraininjury.wordpress.com

    https://thenurseanewbook.wordpress.com

    and

    https://anoneextraordinarylife.wordpress.com/

    and my friend’s blog at http://www.brainheadinjury.wordpresss.com

    Sorry and hope you can understand.

    * “Don’t bend; don’t water it down; don’t try to make it logical; don’t edit your own soul according to the fashion. Rather, follow your most intense obsessions mercilessly.”

    ~ Franz Kafka

    I do really appreciate your liking, linking to and/or following this blog (and “writing in”), so “thanks for the thanx”

    “As we live and move and have our being, so from this vision, we create heaven in our own lives… and perhaps even heaven on earth.”
    – craig (as inspired by Acts 17:28 and the words of Felicia Searcy)

    “Aim at the earth and you may not get off the ground.a
    “Aim at the stars and you may reach the moon.”
    “Aim at heaven and you’ll have earth thrown in…
    and you may even hit the stars.”
    – craig (as inspired by the famous quote by CS Lewis – 24th May 2012)

    “When once you have tasted flight, you will forever walk the earth with your eyes turned skyward, for there you have been, and there you will always long to return.”
    – Leonardo da Vinci

    When (or if ever) you arrive in heaven, let faith, hope and love be the wings that carried you there.”

    – as adapted from the inspiring words of Jonathan Edwards, former minister in New England, Massachusetts

    “The Greatest Race: Living by (with) faith, hope and love is the highest podium any person can reach, God’s podium that anyone stand on.”
    – c

    “Having pursued the goals, the dreams set before us and run the race with persistence and endurance, after giving it all. Then one day standing on the summit of life, breathing in the pure sweet oxygen of achievement, totally satisfied in running the greatest race, the race of life one that ANYONE can run and win.”

    from http://racetothechequeredflag.wordpress.com/
    and http://www.godandformula1.wordpress.com

    “If a man is called to be a street-sweeper,
    he should sweep streets even as Michelangelo painted,
    or Beethoven composed music, or
    Shakespeare wrote poetry.
    He should sweep streets so well
    that all the hosts of heaven and earth will pause to say,
    here lived a great street sweeper
    who did his job well.”
    – Dr Martin Luther King, Jr.

    PPS
    Instead of trying to reply to each one of you, I’ll just keep on writing (which I’m often told is what is “safest” for me!)

    “If the doctor told me I had six minutes to live, I’d type a little faster.”

    The various books* that Craig “felt inspired to write” are available at http://www.amazon.com/-/e/B005GGMAW4

    https://www.amazon.com/Craig-Lock/e/B005GGMAW4/ref=pe_584750_33951330_sr_tc_2_0?qid=1476388259&sr=1-2-ent

    http://www.amazon.co.uk/-/e/B005GGMAW4

    http://www.amazon.com/s/ref=la_B005GGMAW4_sr?rh=i%3Abooks&field-author=Craig+Lock

    https://www.createspace.com/pub/simplesitesearch.search.do?sitesearch_query=%22craig+lock%22&sitesearch_type=STORE

    http://www.creativekiwis.com/index.php/books

    and http://goo.gl/vTpjk

    All proceeds go to needy and underprivileged children –
    MINE!

    “When the writer is no more , the value of your purchase will soar! ”

    Don’t worry about the world ending today…
    as it’s already tomorrow in scenic and tranquil ‘little’ New Zealand

    PPS

    “I wish you well on a rainy day
    I wish you rainbows to brighten your day
    To feel your quiet moments with a special kind of warmth
    to remind you that happiness can happen
    when you least expect it.

    I wish you rainbows to make you laugh and smile
    to show you the simple beauty of life
    and to give you the magic of dreams come true.

    I wish you rainbows
    I wish you well.”

    – Larry S. Chengges

    ”Since I can never see your face,
    And never shake you by the hand,
    I send my soul through time and space
    To greet you. You will understand.”

    – James Elroy Flecker (1884-1915)

    Like

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